My Bad News

So I haven't posted in a bit and this one isn't going to be about anything good, but I can finally write about it without getting super upset so it is time to write about my feelings and next steps. My fatigue has been getting worse to the point that I feel like I can no longer function so I decided to go to a new Rheumatologist to see if he had an ideas to help my Chronic Fatigue. Due to my history of Lupus and to another Dr thinkinkg that I have Fibromyalgia he decided the first step would be to do some bloodwork(14 vials to be exact). So I went to the lab and then would return to see him again in 4weeks.

Last Sunday after helping my mom move, my fingers started to ache like back when I had Lupus just not as bad. I thought maybe it s just from the stress of the day and doing a little help with the boxes. By Monday they were worse along with my wrists. Thankfully though I had my appt with the Rheumatologist the next day.

Wed came along and that is when my world shifted. My Lupus is now back with a vengeance, I also now also have a disease called Sjogrens, along with Fibromyalgia. All of these things are bad, but combined even worse. So I have been in a bad place since last week. Trying to fit all of the pieces together and see where to go from here. Asking the questions if I am going to be able to see my kids grow up(and freaking out that I am not). I thought my Lupus was gone along with my old Dr but it turns out that it was only in remission. That in itself is a huge shock to my system. I guess I took it for granted that for the most part I was just tired but feeling okay. Now my life is so different and up in the air.

To explain to those of you who have asked what all this means is this. Extreme fatigue(not like I can even explain), joint pain in all of my fingers, wrists, shoulders etc, dry painful eyes and skin and feeling everyday like I have the flu.

What these diseases can cause, kidney failure, stroke, heart attack, liver and major organ failure, increased susceptibility to infection. Basically nothing good. Their is no cure, only treatment to lessen the symptoms and keep the bad things at bay as long as possible. I need to have a positive outlook to help my stay strong and less sick but right this moment it is very hard for me. So if I am not myself right now I apologize in advance.

I am searching for things to make it better and if anyone has an ideas let me know as I am open to all things.